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My father is 86 years old, fairly severe Alzheimer's. He remembers almost nothing, he is very agitated and even a little violent (screaming, striking, pinching caregivers) about 25% of the time. He has urinary incontinence while sleeping. Due to a broken hip last year he cannot walk.


Medicaid will pay for an aide 12 hours a day. I would like to pay the aide another $50 to stay overnight as well. There will of course need to be two different aides so that the primary aide has a day or two off each week.


I except the aide to keep my father safe, fed, clean, comfortable, etc while also being an excellent housekeeper who will keep the apartment spick and span. I don't want to hire a housekeeper on top of the aide since the aide will have a couple of hours of downtime daily when dad naps.


This is in Brooklyn, NY by the way.


Do you think this is reasonable? Will it be difficult to find the right people? Any advice?


Thank you!

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Most agencies do not allow off the books moonlighting. The agreement I signed with an agency forbade hiring the employee privately. Additionally $50 is not enough for someone that needs overnight care. If he did not need overnight attendance, you would not be looking for that. If the Aide is on shift morning and night when does she sleep?
Might as well face it. It get very expensive to have 24 care at home. An agency charges $17 to $25 per hour. You can get an individual for as low as $10 hour, but you do not have the backing of an agency.

With sundowners and evening incontinence, you cannot assume the night hours are idle, they can be some of the busiest.

The Aide is there for dad, she may prepare meals, pick up after that, pick up after dad....maybe do some light housekeeping, such as soiled sheets. She is not paid by Medicaid to keep the apartment spic and span, so temper your expectations on that. Do not expect she will clean windows, baseboards and vents or vacuum drapes.
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Private aides (self employed or hired through an agency) get on an average $20 an hour and more for awake overnights. They are not employed to act as housekeepers.
Housekeepers (self employed) get on an average of $15-25 an hour to keep a home spic and span.
Urine or feces soaked sheets are usually not part of the deal.
Home visiting LNA's will charge $50 a visit just for a bath.
If you are so concerned about your parent and his needs then best coarse of action would be to do it yourself. Have him move in with you or visa versa.
Home carers and housekeepers are the most unappreciated of the working class. They charge well below what they worth. Perhaps you need to do the job before you hire someone else? It might give you more perspective.
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If he needs 24\7 and is on Medicaid maybe it would be best to place him in a facility. Paying $50.00 for overnight seems to imply that the caregiver will be able to sleep all night. But unfortunately, you cannot sscheduleor know which nights dad will need help. We have a caregiver come once a week. Her instructions are do not concern yourself with cleaning! Her job first and foremost is to keep my mom engaged and comfortable. In addition if someone were cleaning the house my mom would become very suspicious then agitated (and who knows where that would go). She has tried to throw caregivers out of the house before, yes physically. If you want a good working relationship with the caregiver realize that person's job is to take care of dad and cleanup necessary messes. That is enough. Hire a housekeeper to come in one every week or two.
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I work in home healthcare as a nurse and we've had clients who expect our aides to keep the house 'spic and span'. This is not what our aides are for. They are expected to clean up after themselves and to keep the patient area clean and neat but they are not maids. If you're lucky you might get an aide to wipe the kitchen down before she leaves. They don't do windows, they don't re-grout tile in the shower, and they don't work in the garden (some of the things our aides have been expected to do).

If there is down time then the aide can bring a book, or have a snack she's brought with her, or eat her meal she's brought with her. 12 hours is a long shift and the aide needs a couple of breaks too.
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The aide will be able to sleep at night - most of the time. However I want him to sleep in the same room with my father and help my father if he wakes up and is upset, which may happen especially towards morning.

$50 per night adds up and I cannot afford more than that.

I cannot have my father live with me because I work. I do however plan on calling the aide every two hours during the day and receiving a detailed explanation of what has transpired. I'll be keeping a close eye on things.

I'll also vist dad before and after work to make sure dad is fine and the house is spotless as well.

I wouldn't dream of dehumanizing my father by placing him in a nursing home.
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If the aid is in the same room there will not be much sleeping going on. Maybe you should look for a live in maid for the spic and span house and a caregiver for dad's awake hours.
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If your father's not walking at all, there's an additional burden on anyone caring for him. Do you have a Hoyer or other type lift? Has the bath been modified so his wheelchair can be rolled in for showering?

I agree with the other posters. If you want a spotless house, you'll need to hire a cleaning service. That is well beyond what any aide could be expected to do.

You may have to temper your expectations as I honestly don't think they're realistic.

I'm also wondering about his post-hip fracture situation - was the therapy unsuccessful?
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From looks of things you are in New York. I would be very surprised if you could find anyone that would meet you expectations. You've got my GOAT.
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We have a Hoyer lift but the bathroom is not modified. There is some lifting involved. The apartment is three steps below street level so that means that the wheelchair with him in it must be maneuvered up and down those steps. But he only weights 115 pounds.

The hip fracture healed without surgery. The doctors decided not to operate.

I'm in Brooklyn. There are plenty of new immigrant aides here and I don't require complete fluency in English. If we can basically communicate that's fine.

Agencies here, by law, pay $10 per hour and $12 overtime. Then I'm adding $50 for overnight.

I don't want to spend the extra money on a cleaning lady.

So for my $50, plus the agency salary of course, I'm hoping to find excellent 24 hour care and a very good cleaning lady.

But is that actually unrealistic?
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Yes, I believe your demands are unrealistic.

Your father may be light, but wheelchairs even when collapsed are bulky and not necessarily lightweight. Open them fully and add 115 pounds and you have a challenge for a body builder.

Realistically, you'll need to add a ramp over those 3 stairs. Expecting someone to lift a wheelchair upward over steps, alone, with a delicate and/or fragile man with advanced Alzheimers in it, is very, very unrealistic, and very, very unsafe.

I tried that when my sister was in the last stages of cancer and only had 2 steps. It was impossible for me to do, even after a therapist showed me how to manipulate a wheelchair up and down steps.

Then there's the issue of transport. If you don't have a wheelchair equipped van you'll have to hire a specially equipped van. Lifting a wheelchair into a vehicle that doesn't have a mechanical lift is not safe or wise, for either your father or the aide. You would need someone skilled in transfers of an immobile person as well as a specially equipped transport vehicle.

Anyone who could do upward wheelchair lifts probably spends his spare time at Powerhouse Gym practicing for bodybuilding contests.

There's also the gender issue. You wrote that you want a male aide to spend the night with your father but that you also want a "very good cleaning lady." The two are dysjunctive.

A cleaning lady isn't going to have the skills to care for or lift your father, and a male aide isn't likely to have the cleaning skills you want for a "spotless" house. They're two disparate skill sets.

If you hire immigrants, I assume you're aware that it's incumbent on you to ensure they're documented. However, acceptance of someone w/o "complete fluency in English" troubles me, very much.

From your description of your father, I suspect he's weak and frail and also has difficulty communicating because of his apparently advanced Alzheimer's. I wonder if he would even be able to communicate his needs to someone who is a native English speaker, let alone someone who's not.

I see the potential for miscommunication and misunderstanding, especially for someone in the advanced, aggressive stage of Alzheimers. Your father may become even more agitated if he isn't able to have his needs addressed because of communication difficulties. The aide could be blamed for problems and events that aren't his fault.

I don't see how what you want could be accomplished without a full time live-in caregiver for your father.

I also think that 2 hour contact with an aide every 2 hours is insulting to the aide and will interfere with his attention to your father. If he's struggling to move your father, do you expect him to stop to answer a check-up call?

Seriously, you need a live-in aide just to care for your father. Forget about the extra cleaning tasks because an aide is going to be too busy just caring for an immobile, uncommunicative, incontinent and apparently sometimes combative person.

This is a bad, bad plan.
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GA makes some very good points. First the non-fluency. Just this past week another caregiver spoke about the difficulty his wife is having when non-fluent caregivers are brought in. It is not only difficult for her, but also for him. Because of her advanced Alzheimer's she becomes more confused and agitated that she does not understand the caregiver. It is not at all unusual for families to request fluency in a caregiver it is for the parent's well being. The steps with a wheelchair creates another problem. It does not appear that you have thought this out well and are naturally concerned about cost, but there is no way around it, home care is very costly to provide a safe and comfortable environment.

He would probably be best in a nursing home, or think again about your apartment. You could spend the nights with him, bring in care during the day while you are at work. And you would be paying for one place to live, not two.

You need to reevaluate the situation and reconsider your options.
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I have to agree with the above posters. I am a nurse who works in home healthcare and I'm not sure your expectations are realistic.

There are 2 types of overnight shifts. A "resting" overnight and a "non-resting" overnight. The resting overnight means that your aide is guaranteed at least 6 hours of sleep a night. The non-resting means that the aide is up while your father sleeps and for this you will pay more. Here in St. Louis a daytime shift costs about $10-$15/hour for an aide. If you need overnight it costs more. For someone who needs 24-hour/day care we staff 2 aides in 12-hour shifts. This is easier on the patient and the family and the aide. You have a day shift and a night shift. The night shift makes more than the day shift and makes much more than $50. That's only 5 hours of a daytime shift (figuring conservatively). I wouldn't accept a night shift for $50. I wouldn't even consider it.

Aides don't sleep in the same room as the patient regardless of whether the aide is male or female. Separate sleeping quarters are required.

And getting your dad up and down 3 steps while in a wheelchair would require strength that even a male aide may not have. Your dad may weigh 115 lbs but the wheelchair weights 40 lbs. Not to mention how unsafe that would be without a ramp, for your dad and for the aide. To get up the stairs the aide would have to turn your dad around backwards (in his wheelchair) and drag him up those stairs. This is very unsafe for your dad as he will be pitched forward. To get down the stairs the aide would, once again, have to turn your dad around backwards and let the wheelchair bump its way down those 3 stairs. The aide cannot push the wheelchair up or down as your dad wouldn't be secured. It has to be done backwards.

Calling every 2 hours is inappropriate and will interfere with the aide doing his/her job. It also demonstrates a lack of trust on your part and a need to control everything while you are not there. Not good for morale at all. You either trust the aide you hire or you don't. If I had a family member calling me every 2 hours I would communicate to them that it's unnecessary and that they hired me, they should let me do my job. If the overbearing nature of a phone call every 2 hours continued I would quit. Plus, I chart everything, any changes, anything out of the ordinary, and if it was just a regular day I chart that too. I chat what the person eats, when they take their meds, when they use the toilet, if they've had a bath, etc. I chart everything. There's no need to call every 2 hours. And even IF.....IF.... you could find some person who would clean your house top to bottom during all of this how do you expect this person to take care of your dad, take care of the house, AND answer your calls every 2 hours? That sounds like a nightmare of a job to me but I wouldn't be cleaning either so maybe I could take a phone call occasionally.

As you said, you're in an area with a lot of immigrants and maybe you can find someone to work this very strange job and maybe this person would be grateful for $50/night but it's exploitative and you get what you pay for. If the pay is too low, and it is, you're not going to find someone qualified and experienced. And from what I gathered you're basically saying that you can find "immigrants" (let's just call it what it is, illegal aliens) to do this job for less money and if that's the case I think that's disgusting, not to mention illegal. Because they're illegal aliens they'll take whatever you offer and be grateful for it. That's what I'm reading in your post.

It's obvious that you love your dad and you want what's best for him but again, as a nurse who works in home health and with all due respect for you and your dad, you're going to have to amend your expectations. Unless you find people to exploit in which case good luck with that. I have a patient (she's my favorite patient right now) and she's in a nursing home. The aides there are all immigrants (Bosnia, Jamaica) and they are cruel and uncaring to most of the residents and this is at the nicest NH in town. Certainly the nicest facility I've ever been in and I've been in too many to count. And these aides work for a huge corporation and they still treat the residents horribly!

My point is that if you're trying to go cheap, trying to get the most bang for your buck, the one person who's going to pay dearly is your dad.
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I'm talking about a man who can legally work here; otherwise an agency funded by Medicaid could not hire him. However if his English is heavily accented and more a less a beginner level that doesn't bother me.

I have to admit that I am very frugal. A penny saved is a penny earned! I expect a good work ethic, no "attitude", and I like to keep workers on a very short leash.
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"Short leash"?? My god, you're hiring a human being, not walking a dog! The only people you could get to work for you are those who couldn't find other jobs.

I can't even begin to describe how offensive that remark is. I even wonder if you're serious or just another troll trying to jerk our individual and collective chains.

I'll bet you're rolling in dough, maybe you're even an investment banker, and treat your staff like crap.
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OK, I'm sorry because I have been a little deceptive. I am not this man's son; I am, for the moment, his home health aide.

But the situation which I am describing is exactly what his two daughters, who have taken charge of his care in recent years, are doing. I am not exaggerating one single word.

I'm American by the way, 53, divorced, former computer programmer who was unemployed for three years thanks to the Great Recession. I went into home health care a year and a half ago just to survive. I discovered that I really enjoy it. I love to directly, personally help people. I actually saved a patient's life once when he was having symptoms of a heart attack. What a thrill!

So I started this particular case two weeks ago and I was told two days ago that today, Sunday, will be my last day. Last Thursday I took a day off to visit my kids (being penniless didn't help my marriage btw) so the agency sent a 57 year old Ukrainian man as a sub. He is very nice and he straightened up the living room without being asked which I think scored huge points with the daughters. They offered him the job; at first he refused but apparently his wife pressured him to agree. He arrives 8:00 am tomorrow.

Anyway, since I am still a little new in this, I've started wondering: Is this situation normal??? Does this make sense??? My instinct is that the daughters have a few mental problems of their own.

Incidentally, he was walking until last November. Then he broke his hip. The children "don't know" how it broke and think it may have been spontaneous. Since it had already begun healing the doctors could not operate. His hip healed crookedly and he cannot walk or stand without pain even with a walker. Personally, I think he fell while with an aide and the aide just said nothing.
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A little deceptive? LITTLE???

You know, if you wanted opinions on your situation and whether or not it was normal, you could have just stated so. It wasn't necessary to be so dishonest with us.

I thought there was something very odd that a man who had fallen no longer walks. You mentioned nothing about post fall PT which I also found peculiar.

I have read of spontaneous fractures due to having taken Fosamax.

And regardless what you think may have happened to cause the fracture, I also find it inappropriate to speculate that an aide said nothing after a client fell. You impugn the integrity of someone you don't even know and even suggest the daughters have mental issues.
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Here's another way to view your deception. You posted a profile that states:

"I am caring for my father, living at home and the primary ailment is alzheimer's / dementia."

Now you've admitted that's false.

You've also violated the TOS, which provide in part:

"You may not post on the Site any content which (a) is libelous, false, defamatory, ...

(c) violates the rights of others, such as content which ... violates any right of privacy or publicity; or (d) otherwise violates any applicable law ... You may not impersonate any person or entity; falsely state or otherwise misrepresent your affiliation with any person or entity. "

https://www.agingcare.com/termsofuse.htm

Maybe you should rehink your whole approach to this profession as well as posting on a public forum.
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I wanted to hear what other people would tell these daughters. I think they are obnoxious and a little crazy, however I was wondering if I'm being too harsh. From the responses I've gotten the answer seems to be a clear "no".

Everything I've written is precisely accurate, except he is my patient not my father.

As far as I know spontaneous hip fractures are unheard of for males.
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I've updated my profile.
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Your expectations and your budget are unrealistic. Particularly in NY, state with a high cost of living.
Honestly you need a different plan.
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It can seem like a very difficult process -- but it isn't! :) You just need to know the right questions to ask and you will be able to nail down the right one for you!
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Your 'discussion' isn't even relevant anymore. Had you just posted your concerns about your situation you would have found support and suggestions but you've ruined that opportunity now. I think you're just a troll.
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Eyerishlass, thank you for expressing your frank opinion as well. Troll is right - he abused the privilege of posting, lied and perpetuated that lie until he finally decided to be honest.

To anyone who hasn't read the entire thread, don't bother to respond to the OP. He isn't who he claimed to be and this whole excursion was a waste of our time.
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Not a waste at all. I've now left that job, but thanks to the feedback I got here I told this family that they are putting their father in danger and I explained why.
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I was referring to our individual and collective time - not yours. You had a hidden agenda and used it.

And if you think that feedback from a forum on which you posted false inforomation is sufficient to use with a family which hired you to care for their father, you should think again, especially why you're even in this field.

I can't imagine you would ever get any decent references, even if you didn't want them, after telling a family you posted about their situation on a public forum. You revealed personal information which you had no right to disclose. No only did you not respect theirs and their father's privacy, you violated the TOS of this site as well.

Go troll elsewhere.
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What type of personal information? You don't know who this man is.

What difference does it make if the child or the aide posted this question? I passed the answer on to the child.

Seriously, is this a forum about dementia or by people who are demented?
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What difference does if make if you pretend to be someone else? Well, folks here are pretty straight with each other, knowing people take precious time to help. Your first instinct was to be dishonest with them Then you turned insulting. FWIW, you have attitude that will create problems dealing with the families.
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The OP posted this 2 days ago:

"So I started this particular case two weeks ago and I was told two days ago that today, Sunday, will be my last day."

Linda, perhaps it is his attitude that made this only a 2 week job.
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This is the Internet. Do you really think everything people are writing on your screen are true? Even face to face people are often far from honest.

And again I just don't get it. What is the huge difference if I am the child or I am the aide and I will pass this on to the child?

It's not like I'm pretending to be doctor and giving all kinds of bogus advice or something. Or I'm pretending to have a fatal illness and making a my own website and really I'm healthy.
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Got it - since it's the Internet, one can start off with dishonesty (when the truth would've done you more good). Frankly, I don't see much point in not being straight on a help forum...after all, you're trying to get good advice that will help you on a critical life matter. And yes, GA, attitude in a stressful family situation could definitely make this aide not a good match for them.
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