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Everyday on this forum, I read over and over and over again and again about the family caregiver complaining about their siblings not helping with their parents.


I'm sure I'll get back lash from a lot of you, but, here is how I handle things and it certainly makes my caregiver life much easier and happier and I get along well with all 3 of my siblings.


First, caregivers, stop the need to run siblings' lives! It's none of a caregiver's business who wants to help with Mom and/or Dad and with what chores need doing. If they choose to help, fine. If they choose not to, fine. Not everyone is able to be, wanting to be or willing to be a caregiver for many legitimate reasons.


Second, caregivers need to stop complaining and go on without the help they are needing or wanting from siblings. If siblings are truly interested in helping, they will contact and ask you what they can do to be helpful. .


Third, Have a list of responsibilities that SIBLINGS choose from (not you) in case they ask. Tailor those responsibilities according to how often they can help, what is practical for them in helping. Example: don't expect someone to drive/fly 5 hrs away to do some trivial little thing then drive 5 hrs back. It's a waste of their time and fuel. Find something else for them to do, such as pay bills, help with insurance, send a monthly family letter to all siblings that can't help but want updates. This can easily be done by caregiver sending a 2 or 3 minute voicemail to a sibling who lives too far to do much but is willing to help. They can dictate a message and send as an email, text etc to other siblings. This message can include updates on Dr visits, prescription changes, changes in mom/ dads health etc.


Third, caregivers.... For those siblings who do not wish to or cannot help, back off from them and quit trying to guilt them into helping. They have their own reasons why they are not helping. It's on them. Not you.


Fourth, Quit wasting time complaining and getting yourselves all annoyed and worked up. It really isn't worth it. Some caregivers are in the role to play the martyr, some do it for the attention, and some do it for the pure love in their hearts. There are just as many reasons why people don't help. No one is under ANY obligation to help. At the end of the day, everyone will know if they've done the best they could. It's not up to anyone to judge others.


Fifth, Just find the best help you can for mom and dad, place them in a facility or do what needs to be done. There is a lot of helpful info on how to get the help you need and just let things be.


All you can do is do the best you can.


Sixth, if you're one of those caregivers who chooses to control how things are done when siblings try to help, then complain how they do it, stop it and be grateful you have any help.


Finally, Good luck to us all and if this message has helped even 1 caregiver, then my mission is accomplished.


I thank my counselor who helped me make sense of it all decades ago and to control only my life and to let others live theirs. I'm grateful that I can get along so well with each of my siblings because I hold absolutely no grudges at all toward any of them. Life is too short. ❤

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Flowerhouse, I love this. I only wish it was posted in discussions where it would last longer, go on forever. I have put it in my bookmarks in the hope I can repost it with credit to you. I often just say "You cannot change others. I have known all my life, much I loved being a nurse, that I was not cut out nor could for a single second DO 24/7 in home care".
My hat is off to those who can do this, and I so wish siblings who can NOT do it would kick in at least with some respite, with bags of groceries, with meals delivered, with loving support. But we CANNOT change others and it is such a loss of steam to try to do so. It causes anxiety and frustration.
You you hit but ONE of my pet peeves. My worst is warring siblings who try to tear their elders in two when they are at their most vulnerable, but this one shows up over and over again.
I appreciate your taking the time and organization to say this so well.
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Sixth, some caregivers didn't volunteer for the job and were simply the ones who didn't feel it was right to walk away or were the single sibling, the youngest sibling, or most likely, the daughter and were simply expected to take on the task.

I think it's perfectly understandable to hope siblings would step up, but I have always said that people will do what they'll do no matter how much you hope for more. My brother lived only a mile or so from my folks, but he didn't do anything for them. He just didn't have the patience, and there must have been something else going on between them that I'm not aware of. Still, he has had my back throughout the years of their illnesses and decline and did step up a bit when we got to the end with both of them. At least it was something.

Bottom line -- People are complicated. No sibling has the same relationship with the parents as the others do, and it isn't worth the stress to try to get help from everyone. As long as the caregiver has the POA and all the decision-making abilities, it's best to expect to be doing the job on your own. Any help you get is just gravy.
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What an excellent summation
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dear OP,
:)

hug!! i wish you well :).

regarding the topic: i'm someone who strongly disagrees with what you said.

1.
most people who are complaining about their siblings, are complaining because the siblings do ABSOLUTELY NOTHING.

2.
dear OP, you have no grudges towards your siblings. the only way that's possible, is that your situation is different: your siblings -- in some way -- contribute, even minimally.

there is no way it's possible for you to have ZERO grudges if your siblings did ABSOLUTELY NOTHING.

3.
here's an example of doing nothing:
siblings not even reacting to life-death situations/updates. they read the message, but don't even say "oh no! how terrible!"...
no reaction at all.

here's another example:
siblings not helping to look for facilities.

indeed, we're not talking about siblings who've been mistreated/abused. of course, no one will be angry at their siblings for doing nothing, if they've been treated horribly by the parents.

we're talking about siblings who've been treated very well. and yet, choose to do ABSOLUTELY NOTHING (not search for facilities, nothing). they do nothing, so you're forced to do something. they know you won't abandon. you'll look for a facility, whatever; they know YOU'LL look for a solution. even if you decide to do nothing, to try to force the siblings into action, the siblings will STILL do nothing.

4.
for those who do have grudges against their non-helping siblings, I SAY WITH ALL MY HEART:

GO AHEAD!!!!!
you're right.
don't let anyone tell you, you're wrong about being angry.

of course, EVERYTHING shouldn't be dumped on you.
of course, they should help look for a facility, etc.
of course, they can help with X admin task, or Y phone call. there are a million ways to help (some of the ways take less than 1 second, and already YOUR load/stress is less heavy).

5.
GO AHEAD AND BE ANGRY.
don't hold it in (THAT WILL BITE YOU BACK).

6.
my opinion:
in addition to venting to others, let the anger out directly against the siblings. they deserve it. they should not be clueless about your anger.

7.
DON'T TRUST SOMEONE (for example your non-helping siblings) WHO'S WILLING TO TOTALLY SACRIFICE YOUR LIFE -- who's not even willing to lift a little finger to make things a little easier for you.

DON'T TRUST THEIR OPINION (the non-helping siblings' opinions of themselves) ----- no one who is guilty, is going to admit they're guilty, doing something bad. guilty people defend themselves. guilty people have a million excuses.

8.
although you're rightfully angry, try all you can to MAKE THE MOST WONDERFUL LIFE for yourself.

in other words, give the anger to karma.
let karma deal with it (after you've gotten it off your chest, against your siblings: let the siblings hear you. write to them, even if they never read it. you must stand up for yourself).

then let karma deal with it. why? because you can't be happy and angry at the same time.

hug!!

bundle of joy :)
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Point Six reminds me of when SO had taken his dad to the doctors, wheeled him back, helped him transfer to the toilet. SO emerged and Brothers Wife was screaming at him to get back in their and wipe him. SO told her it’s her job. It literally is. She gets paid over market for a 40 hour week, and this is one of her most important job tasks. The other is accompanying them to the doctors, which Brothers Wife couldn’t do since there wasn’t a ramp. Well now there is, that’s your help so you as the hired help can do the job you’re paid for.

Oh, and then yesterday, he’s over there doing the last of the ramp work. SIL had taken off but mentioned she was going to, to Brother. Brother comes over to help finish the ramp, and then MIl needs the bathroom full assist. She selected Brother to go in there with her and then SO heard her crying and keening. Thought she fell, but she was having an emotional meltdown because this had been the first time she’d required her actual children to toilet her. The Brothers are not ok with it and the mom definitely isn’t, so be ok with another aide.

SIL further has adapted the parents’ expectation for SO, which now will evolve toward his getting involved because SIL wants a break for some reason, or because one person isn’t enough to be there. If it’s the latter, I don’t want any enabling on why he has to be the one to do this on his weekends off. No one bothers her when it’s her weekends off.

If she said to them that she herself needed an extra aide for the days that doctors appointments needed to happen and got shopping assistants, the problem is solved. Instacart or Safeway.com solves the excuse of her disappearing on them for hours on end. The extra aide would be there to attend either to the driving or sitting. We aren’t the extra aide and feel not one bit bad about not reaching out to help SIL.

It is her paid job. Well paid. That makes her a professional.

We expect her to act like one.
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What is your caregiver life? Another post says that one sister visits your mother in MC 2x/week, and that you and another sister visit 1x/week. Does the other sibling not visit at all?

Just curious, as it seems you would have reason to resent siblings who do no caregiving.
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I honestly think that you dont have empathy towards others situations. Not everyone has siblings that help,. Have you heard of caregiver burnout??? Compassion fatigue??
its super sad that all of the children don’t pitch in… I don’t know how they live with themselves.
also, this forum is for people who need to vent…
I would say yay for you everything works out so well but for most, that is not the case.
of course it’s your post but I think this is the wrong place
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Flowerhouse - Amazing post!

Siblings are not plants. To be put where you want them. Or provide you shade when you sat yourself in the sun.

They grow their own way.
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Because they're human beings. We could justify all kinds of behaviour with your childish "it's their lives, life is too short" logic. Life is also more *complicated* than that. Morally, you'd expect them to give a damn about their parents, & I cant empathise with people who don't. We are not the same. (And I say this as someone who has spent some time reading this forum in recent days & dont think I could do half of what many of you do).

I just dont know how some people wash their hands of parents or siblings in need so easily. It's very sociopathic. It's also a shame that this behaviour is somewhat rewarded as these insanely selfish people seem to live better lives.
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I agree with the boundary that you state here: I cannot control others - I can only control myself. This would include caregiving and all of life's choices.

Where the "how come no one helps me with caregiving" problem comes in is in these examples which I will give:

1. Sibs or others who make a spectacle of claiming they are willing/able to help and then do not show up, show up and stay for much less time than is needed/implied, and complain about how long it all is taking and how much other stuff they have to do.

2. Sibs or others who complain about the caregiving job that I'm doing and want me to do things their way - but they are not going to help. Seriously?

3. Sibs or others who basically accuse me of "making the situation worse than it really is" or "it can't possibly be that hard to help (elder's name)." Thereby putting it on me that I'm simply working too hard and sensationalizing the situation and that their help isn't really NEEDED.... because I just need to get over myself and do the job efficiently as per their instructions.

4. People who do not understand that it really CAN take most of a day to take an elder to the doctor. My concerns about taking elder to the doctor don't stem from the basic premise of doing so. My concerns stem from having put my life repeatedly on hold for an entire day to fulfill others' expectations that elder should see this particular doctor.

5. The expectation that caregiving done by ME should continue uninterrupted regardless of my health and wellbeing. The EXPECTATION that I can just keep going. In my situation, it's THIS that leads to "why don't the sibs/others help me?" That it's perfectly OK for THEM to expect ME to sacrifice my health, my job, my relationships, etc. BUT, somehow it's NOT OK for me to expect those same people to help me??

6. And, last but not least, getting screamed at about "saving the house from Medicaid" at the 11th hour when this possibility was known and should have been planned for years earlier. A non-helper expecting me to protect his inheritance? Sorry, too busy providing the CARE that he would then claim was both substandard and sensationalized.

It's not purely that "jeepers, how come no one helps me." It's all of these things I listed above and probably many more. Relationships are complicated and family caregiving isn't so cut and dried.
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So, is the underlying advice here "don't ever expect anything of anyone and you'll never be disappointed"? I mean, it's a true statement, but it's kind of a dismal way to live life, don't you think?

Maybe a different way for caregivers who feel unhappy about the lack of help from siblings should instead post "I had *hoped* my siblings would think enough of me and MY health and well-being and time and life to offer help with caregiving for OUR parent(s) and I'm hugely disappointed that they don't; how can I get through that?" as a question.

FH, I get what you're saying about boundaries, and not being able to change others, so for your own sanity you need to try and change yourself, but that's often easier said than done. And I have to admit, I'm a little turned off by the entire "just deal with it" tone in parts of your post.

In my experience, when you get to this point with a sibling and sharing caregiving duties of an elderly parent, there's already a LOT of history between the primary caregiver child and the ancillary siblings - some good, some bad. I think it's a rare case where all of the siblings grew up with a "all for one-one for all" dynamic, only to have it torn to shreds over caregiving. I will fully and freely admit that when it came to my 2 sisters, the one with whom I am closer got a LOT more slack with my understanding about how much she was/wasn't willing to do than the sister with whom I am not close. That's my sin, and I admit it. But my attitude didn't come out of the blue, it was, in part, based on 50-odd years of selfishness of behavior on HER part, right or wrong. Maybe I'm not as good a person as you, to be able to separate all of that history from caregiving for my mom. And my mom wasn't particularly hard to care for - at least not so far as many of the other examples I see here. Maybe it's not "fair" of me to use a different scale for judging my sisters, but to minimize my feelings about the situation isn't "fair", either. You gotta feel what you feel until you don't feel it anymore. As long as my feelings aren't causing me physical/mental/emotional harm, then I'm good with them.

I commend you for your ability to not hold a grudge, and that's really wonderful for your relationship with your siblings. But I am not willing to wag my finger at the caregivers who come here to vent about the selfishness of absent siblings, saying "shame on you", telling them in essence since you can't change it, you need to suck it up. In my opinion, that's really just to rub salt in an already large, painful wound.
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A lot of the people who I feel most sorry for are those who have backed themselves into a corner: they've already given up homes, financial security, marriages, and even their own physical health in the effort to care for a loved one.
Problems in the family arise when those people fail to accept that not everyone in the family has the same values and priorities as they do and aren't willing to make those kinds of sacrifices - putting a spouse, children, job, and even me time ahead of caring for a parent isn't wrong, it's just different.
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dear flowerhouse :),

hug! :)
i love your screen name.

i’m thinking your situation (mayyybe) (only you know) is a little different from those who rightfully are angry (everything was dumped on them, while the siblings ran away).

maybe your siblings show you gratitude for what you do. i hope so!!

maybe they say many kind things about you and to you :).

i understand your siblings don’t help you; you’re doing it all.

what i mean is - in some way - they might be contributing:
examples:
-maybe they call sometimes to ask how you are
-maybe they call sometimes to ask how your elderly LO is
-maybe they sometimes visit the elderly LO and do a tiny thing (like bring a gift, flowers, something)
-if you send an update about an emergency, although they don’t help, maybe they react to the update.
-maybe your siblings sometimes show gratitude to you
-etc.

——
there are some siblings who truly behave appallingly and literally —— do nothing. (some siblings even sabotage and make things worse.)

that’s what i mean. there are various degrees of non-helping.

hug!!

i wish everything good for you. :)

bundle of joy :)
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When our father was diagnosed with Alzheimer's Disease in the 1980s, my sister announced that she didn't want to help take care of him, and she disappeared. She moved away (we had no idea where) and got a new job, and we didn't know where she was or how to contact her. That was what she wanted.

Eventually our father died. Several years later, our mother died. My sister didn't attend either funeral, because, as I said, we had no way of contacting her. Eventually, she reached out to a relative, who told her that our parents had died. That's when she showed up, demanding to know what had been left to her. She was told that after our father died, our mother made a new will, which left everything to me and nothing to her. Our mother's will specified that my sister wouldn't inherit anything because she had run away from us.

The lawyer handling the estate told me that if my sister contested the will, I should offer her a few thousand dollars to make her go away. I said that I wasn't going to do that. She wound up not contesting the will. I believe it was because she would have had to pay her lawyer upfront.

So she disappeared again. I have no idea where she is. Some siblings just don't want to help, and it has nothing to do with how the caregiver manages the situation.
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Honor thy Mother and Father so that you shall live a long life!
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I actually do not mind the lack of help from other family, if they can't. What I do mind is the lack of help while interfering or openly causing more problems and or criticizing what they refused to do. If you are not willing to truly help, or take responsibility, or make the hard decisions at least butt out and let the ones who are do what has to be done do it as best they can and DO NOT throw wrenches in to make things worse. If you wnat a say you better be helping and part of the team for the LO.
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Totally agree, can’t control others so just do your thing. However it works both ways. I have three siblings who take no interest in caring for both my elderly parents. I can only control what I do. I provide no information to them on my parents. When my parents pass, I have no interest in notifying them. If they learn of my parents passing, it will be from the grapevine family who all know my siblings have never taken any interest in assisting their own parents. If they showed up to the funeral, everyone knows they were there for the death of my parents but not for their life. I also chose not to ever have a relationship with them. My parents were good to us and helped all of us in our time of need. If my siblings show no care and compassion for my parents, they are not the type of people I want to associate. They are free to make their own decisions and I am free to make mine.
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I love your post. And this is coming from an only child who had no one to blame when it got too much for me. What I did have was a strong sense of boundaries. And my father pushed against them daily. Sometimes he won and I would be so angry with myself. But that was on me. I made the choice to cave in to whatever he wanted. That is the bottom line. We all have free will. We can choose to help or we can choose not to. What we can't do is expect/guilt/force others to make the same choices we did. As far as 'someone has to do it', correct, but that someone does not have to be you. I am an only child. That does not mean I have to give up my home, husband and job because my father is too frail to live on his own. We all seem to forget that the person needing the help should be the one who has to change the most. Often caregivers give up everything so their parent doesn't have to give up anything. Does that make sense to anyone? "Mom doesn't want to leave her home!!!"...but she is ok with me abandoning my husband and children to watch over her so she isn't inconvenienced? If you feel you must be angry at someone please direct that at the correct party...and it is not your siblings.

For a couple of years, I jumped every time my father snaps his fingers. Then I realized he was doing it just for attention and not actual need. I learned to put up firm boundaries. Once he realized this he decided on going to AL because they would give him more attention than I was willing to give.
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This seems like toxic positivity to me. Every family situation is unique, and everyone's journey is different. Even people who practice positivity and gratitude etc. can have the weight of the world on them due to caregiving and whatever other responsibilities they have. When toxic siblings make a hard situation worse and fail to contribute...that's very painful. The burden of caregiving can rob someone of their sanity. When siblings don't care that the caregiver is profoundly overburdened...acceptance does not come easy. Real life is not always going to be butterflies and unicorns just by having healthy coping strategies. Sometimes people's reality is much different and more challenging than yours. Empathy is always going to be the winner.
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'It's not up to anyone to judge others.' Ya know, I could have sworn that's what you are doing. Why is it, that those who complain about 'complainers', never realize that they are themselves, complaining? (another person commented 'This seems like toxic positivity to me'. Hadn't heard the term, so I looked it up - really hits the bullseye on this one. )"
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You should not strongly criticize any responsible, loving, hard working family caregiver until you have walked in their shoes. You apparently don't have a clue what it entails mentally , physically & emotionally to care for an aging parent. Your comments are very hurtful. The easy way out is to just look the other way or ignore the situation. The plan is to do the best for your aging parent or family member and the dedication of a caregiver is their last hope before a Nursing Home. God bless the caregivers!
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Jde, not all family situations are the same, so I disagree.

Brothers Wife is the day caregiver for my in laws. She’s been paid over market for two years, but fact is she can’t be there managing the one going to the doctors while the other one needs a full assist to the bathroom.

We would love to back her on the logical decision to outsource aides in blocks that they have appointments and she does shopping. But we’re not backing her on the insistence that she can be in two places at once.
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I will just say I an super happy you can write this and feel good about it. Some of us need a bit of back up and you are going to trigger that.

i would love to be the sibling you are so forgiving of which leads me to believe you get a lot of help
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Well isn't that nice. Sorry, but I don't agree with much of what this writer is telling us. Did your Mama only raise you? Or did she raise siblings who received the same loving care. The major problem as I recall from when I was caring for my mother is that I DIDN'T ASK. When I clued in my two brothers, they were more than happy to help in ways that they could. I didn't ask them to care for her all day every day; but they did provide respite so that I could spend time with my husband. I didn't ask them to do for her the "intimate" things that most guys would be reluctant to do for their moms, no matter how much they loved her -- bathing and diaper duty, etc. But they were happy, once they knew about the stress of caring for an aging Mom, to bring a meal and share it with her, or just visit so she knew how loved she was. ASK!! Don't assume that they know about the stresses of caring for even the most beloved parent. They don't, until they do.
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I recall seeing a post about from a lone caregiver doing all the work, unpaid. with no help from siblings. Once the mom died, the siblings decided it was time for the caregiver to move out so they could sell the house and split the money. The mom actually left everything to the other children, not the caregiver child because in mom's and siblings' eyes, she (or he, I can't remember) was living rent free and being supported by mom's SS money, and that was her share of the inheritance.

The caregiver child came to this forum desperately asking for help because s/he was facing homelessness. She had no money, no job, no home.

You go tell her she shouldn't hold a grudge.
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happy sunday :).

some people mentioned, the helping-sibling should ask for specific help from the non-helping siblings. and then miraculously all will be ok.

THAT is not the problem.

----------

OF COURSE, every person on this forum HAS asked for specific help.

what's the problem???
some siblings STILL don't help, even when you ask please (even for a tiny, tiny thing that would only take 1 second).

we're talking about the kind of despicable siblings who do NOTHING.
it doesn't matter that the elderly parent begs for help, or the helping-sibling asks for help please.

they do NOTHING.
in fact, many times, the non-helpers make things WORSE. many people on this forum have siblings who are:

not helpful in any way, mean, toxic, greedy, manipulative, verbally abusive, exploitative, sabotaging, taking emotional/financial ADVANTAGE of the helping-sibling, etc.

many of these non-helping siblings are out partying, and can't wait till the elderly LO dies ------- $$$$$$$$$, inheritance! yipee!!
--------

they're despicable people (some of these non-helping siblings).

--------

also, a good person doesn't need to be asked. a good person ASKS.
"how can i help? how are you? you must be so stressed, dear helping-sibling. let's share the stress. i can't do a lot because i have other obligations. but you also have other obligations, and you're helping. let me take - some - of the load. it's not fair it's all dumped on you. we have to stop this injustice towards you. your life is just as valuable and important as my life."

**Edit:
"plus, i heard bundle of joy is taking notes of all non-helpers, and is going to kick our butts. so dear, sweet helping-sibling, i better help out. how do i start?"
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It's clear to me there are 2 kinds of children: 1) those who interpret 'Honor thy Father and thy Mother' as one of the 'Ten Commandments', and 2) those who interpret it as one of the 'Ten Suggestions, if you're interested'
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There are also adult children that interpret 'honor' quite differently.

Hold in high esteem.
Respect.
Obey.
Serve.

People interpret differently. It shapes their decisions differently. Their decisions shape their behaviour.

If a LO refuses to move into a care setting.. One sibling may decide they HAVE to provide the care setting instead. In their home or the LOs.

Another sibling shrugs & says OK, don't move. Your choice. Does nothing.

They both are honoring the elder's decision in their own way.
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Thank you all for your support & understanding of what a caregiver truly goes through. Now I'll take a deep breath, think positive and make it thru another day!
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Toxic aibling
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